Wednesday, April 10, 2013

God can meet you even at the kitchen sink...

I love blogging, it causes me to write, sit and reflect and see the good work that the Lord has done in our lives. Actually I think my time at Jardine really helped me take the time to reflect in every area of my life. After talking about Burgers4Babies fundraising last night, and our efforts to support NICU Helping Hands, I can't help but just be so THANKFUL for the ways in which God gave us TWO miracles. And you got to see it too. You experienced this right along side us.

I couldn't agree more with what one of my bestie preemie mama friends, Robyn said. "I actually want to trade my extraordinary miracle birth experience with "normal". Really, it doesn't make sense at all. I mean God shows His glory through either experience. But I KNOW my relationship with Him is different, better, and deeper because of what He chose for me. And that is better."  (Read her full post here!) And it depends on the day...I will always long to know what a normal birth experience is like, but you know what...some of us in this life just don't get to experience the expected. And that is ok. GOD is healing my heart for that to be ok. I don't need that reason for me to be thankful for His work in my life.

So I'm washing dishes at the kitchen sink today. Ellie was done eating, I got Davis cleaned up, got Beckett cleaned up and let them play while I finished cleaning our lunch dishes. And we start listening to Pandora to some Contemporary Christian music. And as I'm washing, the song 10,000 reasons comes on. (Now, I'm a little behind on my worship music due to the large amount of toddler tunes and Awana music that my 4-year old prefers) I hadn't heard this song before. It's probably old, now that I bring it up. Well, regardless. I love how God meets me through worship. Some of my closest times praising Jesus was in college through singing.

But it just brought me to tears. Have you really listened to the lyrics?
 Here is the song on YouTube

"10,000 Reasons (Bless The Lord)"



[Chorus]
Bless the Lord, O my soul
O my soul
Worship His holy name
Sing like never before
O my soul
I'll worship Your holy name

The sun comes up, it's a new day dawning
It's time to sing Your song again
Whatever may pass, and whatever lies before me
Let me be singing when the evening comes

[Chorus]
Bless the Lord, O my soul
O my soul
Worship His holy name
Sing like never before
O my soul
I'll worship Your holy name

You're rich in love, and You're slow to anger
Your name is great, and Your heart is kind
For all Your goodness I will keep on singing
Ten thousand reasons for my heart to find


[Chorus]
Bless the Lord, O my soul
O my soul
Worship His holy name
Sing like never before
O my soul
I'll worship Your holy name

And on that day when my strength is failing
The end draws near and my time has come
Still my soul will sing Your praise unending
Ten thousand years and then forevermore
__________

God can meet you even at the kitchen sink...
and there I realized I definitely have 10,000 reasons to SING LIKE NEVER BEFORE.

And no matter what the frustration, the hard times,  the unmet expectation for my kids..
You know what?
The sun comes up, it's a new day dawning
It's time to sing Your song again.

Jesus, thank you so much for putting Ellie and Beckett on loan to Ben and I. We are forever grateful, and may we always SING like never before until we meet you one day in Heaven.



Burgers 4 Babies: Project Team Gramkow Table

T-minus ONE month until Burgers 4 Babies. It's Thursday, May 9, 2013 at Tim Love's The Woodshed Smokehouse! AHHH! I'm a tad behind on my fundraising timeline. The bar is higher . This year to sponsor a table is $3000! YIKES! If you would like to come, please message me...if we get the table, we will have 8 seats! Tickets for Individuals are $175.

But Team Gramkow is sure going to try...and we can only do it with YOUR HELP!

I remember when I first checked out the NICU Helping Hands website when I was pregnant with Beckett. Dr. Hall had introduced me to Lisa Grubbs (now formerly known as Mrs. DRG) via Facebook, suggesting that I volunteer for them. I thought, sure...I would love to be an encouragement to "other" moms who had a preemie...and then went on to have a full-term pregnancy. But what I really liked was that they listed to be a support to parents AFTER they go home from the NICU. I saw such a need for this, and really would have benefited myself having something like this after Ellie.

And we all know the story, if you've been following our journey. September 23, Beckett boy joined us at 25 weeks gestation at 2 lbs. 2.26 oz. (yes, the .26 counts). TWO preemies for the Gramkows.

But I had NO idea how God would orchestrate our story by the amazing people we would meet because of Beckett's premature birth. That the DRG would be on call. That Mrs.DRG and I were supposed to meet to talk volunteer talk on the DAY Beckett was born. And I also knew, even though my volunteering would be postponed that I did semi-accumulate some I owe U Volunteer hours to the DRGs. Like, for example when I just so happened to text Lisa about how Beckett had blown through 6 IV sites, and WA-LAH...Dr.Grubbs just so happens to call Beckett's room to speak with the nurse to have a PICC placement ordered.

This family took SUCH great care of us, and we will always know that Beckett is one of DRG's favorites. So we LOVE the chance to give back through their organization, NICU Helping Hands.

We have been so blessed that our Sweet Beckett is continuing to grow and thrive! And we are so thankful that we have amazing friends who will babysit so we can go share at the NICU Helping Hands Parent Dinner nights at the Baylor NICU Downtown Fort Worth. This has been so good for Ben and I to share our story as we still continually process the chaos we went through these past 18 months.

In January, ah, it must have been before that...I can't remember. But I helped start the NICU Mom CONNECT group that meets monthly here in the DFW area. First meet-up we had 6, Second 3. Third like 12, Fourth 17 (where we made these birth-weight rice babies!) and Fifth 6. I've been to every one, and every one has been SUCH a blessing to my life. To my journey as I continue to be brave as a preemie mama, to talk about my feelings with others who have walked a similar road, and to just be in awe and amazement of these tiny babies' fight for their life. We've talked with tears in our eyes, we've laughed. We've shared advice. But I've learned so much from all of them. Oh, and we've all embraced hand sanitizer. Seriously, it is so comforted to know you aren't going be judged when you pull out the sanitizer. :)


All in all, I know volunteering with NICU Helping Hands is supposed to be a part of Team Gramkow's legacy. I've said it before, and I will say it time and time again. This life is not for us to walk alone. Our experiences shape us, and even the hard ones are meant to be shared. Shared because you just never know how it might relate or encourage someone else.

So please consider donating to our cause. I told Lisa I wouldn't fundraise unless I knew that the NICU Mom CONNECT made a line item in the budget for next year! She confirmed, so here we go!
You may send a check made out to NICU Helping Hands to:
Team Gramkow
Burgers 4 Babies
6612 Trail Lake Drive
Fort Worth, TX 76133


The money we raise will directly impact the work we are already doing as volunteers in serving other preemie parents in "the club." :)

****Oh! Oh! Oh! Forgot to mention that I'm having a Pixie Dots Hand-Stamped Jewelry Party Fundraiser  where all my commission will go toward Burgers 4 Babies! AND if you place a Rodan+Fields Dermatologists Skin Care order, I'm donating all that commission as well! Wahoo! 


Blessings to you all. We will always be forever grateful for your prayers and support to our family.
Love,
Ben, Mandy, Ellie and Beckett

Here are some great pics from last year's Burgers 4 Babies:






Monday, April 8, 2013

Hey! Hey! We're the Gramkows! Long OVERDUE Update

Hello Spring! We are SO glad you are here!
So here we go...quick Team Gramkow UPDATE! Long overdue...my apologies! The boys (Beckett and Davis) are napping, and Ellie is having reading and rest time, so here we go!

1. Beckett boy is now 18 months old! AHHH! He's growing up way to fast! He just hit his "adjusted age birthday" so developmentally he is 15 months! AND WE ARE FULL-FLEDGE WALKING! And he is even a climber now-a-days! Oh BOY! Boys are so different! For example: This morning we strolled to the park. Turns out it's a little different watching 3 kids at the park by yourself.
And with Beckett aka climber, brave pants, he may or may not have:
1. gone down the slide by himself head first where Ellie in front of him luckily caught him.
2. Lost his footing going up the stairs where mom caught him just in the nick of time.
3. went head first down the stairs where mom caught him just in the nick of time.
4. ate woodchips
5. licked the rock climbing wall as if that would help his leg lift
6. tryed to cimb and gnaw on the cement perimeter surrounding the playground.
7. ran NON stop like a wobbling zombie. (It's so cute. He is doing GREAT with uneven ground and different ground textures though!)
8. while swinging leaned forward so far I thought he was going to jump ship.

See I'm exhausted just writing about it. Talk about some boot camp training for this germ-a-phobe/worry-wart mom. I give up. Boys are just going to be boys. I guess this is part of it!

2. Yesterday was a SWEET day for Team Gramkow. And although it might not seem like a huge deal to everyone, it was to us. We went to church ALL FOUR of us! And mama was brave, well half-way brave. I kept Beckett with us during our Young/Marrieds class, but then did put him in the nursery during church. There were only two other kiddos in there, so that was comforting ;) But WOW...I can't believe how much I've missed that...missed sitting with Ben in church. We even stayed afterwards and "talked" to people. Like normal people do. It was a bit of a mixed emotion basket for me. It's almost like I was wanting to show off my baby...now that it was "safe"...but people don't notice an 18 month old like they notice a new baby in an infant carrier. Granted, our church has gone through a lot of turn over, but we're excited now that we've hired a new pastor! So not everyone knows our story...and that's ok...it'd not that they have to...I'm just sharing some perspective how it was a bit of mixed emotion. And I am so thankful for those who HAVE journeyed with us and celebrated with us when the Bman showed up for church with his new skills walking like a big boy down the hallway. It was a little hard though dropping him off. He did great, but as I looked at the other two kiddos...I knew who they were. I remember seeing one of their mamas pregnant when Beckett was in the NICU. It's hard because in some sense I feel like life has been on pause for the past 18 months. And I feel like I've missed out on a lot of my friends' kids' growing up! And I know I was where I needed to be, keeping Beckett home, but just hard. Constant re-focusing battle about choosing to celebrate where we are at NOW instead of grieving what we missed out on these past 18 months. So excited to get back into the swing of things that is for sure. AND after church we even went out to eat at a restaurant INSIDE (gasp). I know...growing experience for all of us. Beckett also chose to gnaw on the table that I had so kindly disinfected beforehand. But it was so good. It was a great FAMILY day for Team Gramkow out-and-about.

3. Bman's eyes are healing so well, and I do feel like his left one doesn't turn in as much. The bloody-ness is almost completely gone! We are back in a month, and we'll be able to tell more then if the surgery was a success. In the Physical Therapy world, Beckett is doing AWESOME! We actually got to decrease therapy to once a month, and then he might be discharged in a few! We are still watching his hips, as they are slightly misaligned when he walks, but this could also be a part of the learning and getting more comfortable. Our homework was to practice different walking surfaces like being outside, and I'd say he's passing with flying colors. He even likes to try and walk up slides. AND April 30 is our last Occupational Therapy visit, if he performs well on that day! We will miss Debbie so much since we've been with her since Beckett came home, but it's bittersweet! So proud of how far Beckett has come in the gross and fine motor skills!

4. Speech Therapy: We have felt that his Beckett Speech has progressed. He tries copying us a lot more with intonation and influctuation. Still no concrete animal sounds. (I seriously need to just move on, and get over that he might never say animal sounds!) But Ellie and I swear he said "Neigh" once. Also, we've incorporated the snake sound to the barnyard family. So he will copy and say "ssss" which is super cute! So it's a snake. I don't really like snakes, but I'll take it!
So his words are: All done (which he does sign too) which sounds like "Ah-du", daddy
He has quite a few in the jabber category. And he does sign All Done, "more" kind of...and he has done MILK once! (Well, repeated at one supper, but we haven't gotten him to do it again since!)
So I'm thinking next time our Speech Therapist comes we'll start increasing his frequency since he is making some steps forward with talking. Again, they say that this usually is the last to come after the gross and fine motor skills are developed.

5. Ellie. Oh my princess has actually been sporting the Rapunzel outfit daily for the past week. She prefers us to call her Rapunzel, and we usually get assigned a character as well. Even Davis. She also told me that she wants to grow her hair as long as Rapunzel's, so we shouldn't have to worry about any future scissor accidents, PRAISE JESUS! Her hair is growing out some, but she still asks me if it's long yet. :) I have to constantly remind her that "nope, not yet..it'll take a long time." She is reading SO well, and will sound out any word! We love going shopping together, although we have had to talk about manners, and I have gotten the occasional "Mom, shopping is boring" comment. She has really had a hard time lately with not having any friends her age to play with. This breaks my heart. I guess she's at the age where Mama, Beckett and Davis just aren't cutting it anymore. Hopefully if all goes well, she'll be back in "school" next year. I know she loves school! But man, I have so realized how impressionable she is at this age. Wow. Tough job for a parent at this age. Lot's of questions which require lots of on the spot answers. I so love how Ellie is just an encourager by nature. She cheers on her brother, and still will thank me when I bring home food from the grocery store. She's pretty much in love with Jon Jon, and does talk and SING about him often. It's a good thing their love is mutual. ;)

6. My life: Crazy busy, and I love it! I've really enjoyed getting my businesses off to a good start. I love learning about the scientific/medical side of the Rodan+Fields Dermatologists Skin Care stuff, and the Pixie Dots has been a fun creative component for me. I LOVE helping people, if you haven't noticed. I love that the Rodan+Fields products give hope for people who think there is none for their skin. I love that Pixie Dots hand stamped jewelry is a sentimental piece that has meaning for someone. Some have asked why I signed up for Pixie Dots. Well, through out my preemie journey x 2, I have encountered many mamas who have lost their babies. And I so wanted to give them something. Something to remember their sweet baby. I came across a website that talked about a necklace being a good gift, personalized....to remind mama that their sweet baby had life, had weight, and they can be reminded of that when they wear their mama necklace. So I also figured, if I'm going to gift these anyways, why not become a distributor to share this sentimental gift with everyone. So, this is it though. Only R+F and Pixie Dots for me. I love that my new jobs have so much personal meaning, can help bring in some income to Team Gramkow, and that I can still stay-at-home with my kiddos.

7. NICU Helping Hands. Oh, how I love giving back through this organization. I think we have about 30 walkers signed up with the NHH Team for the March of Dimes: March for Babies on April 20! This will be so fun to meet the families and miracle babies of my fellow preemie mom's group members! The mom's group meetings continue to be such a great healing component for me, and I just love connecting and encouraging other preemie mamas! AND what's even more exciting is that NHH has allocated more financial resources for our NICU Mom's CONNECT in next year's budget! WAHOO! So the main NHH fundraiser is coming up on May 9, Burgers for Babies, and Team Gramkow is going to try and get a table again this year! $3000 to raise...so we shall see! If you'd like to donate to this cause, please let me know! I will have more details about this tomorrow, as it will be one month out! If you want to come with us this year too, let me know!!

8. NHH Angel Gowns - Does anyone want to donate their wedding dress to NICU Helping Hands to turn them into angel gowns for our babies who have gone too soon? If you do have a daughter, or want a keepsake, they will also make a bridal piece for her bouquet out of your dress for you to have. And the coolest part...some of my fellow preemie mom's group members are helping sew them! But we need more seamstresses too!

Isn't this such a beautiful thing? I'll be donating my dress once my mom can dig it out of the closet!! :) I'm so thankful that Ellie will have a little keepsake from it though.

Ok...well, time is up... I hear a crying 4-year old who is probably bored of reading and rest time. ;)
More later,
Mandy