Finally home from GI. We are exhausted. Have a new plan. Definitely has reflux, doing pH study on Monday. To test its severity (but we have to stop all meds for three days prior), holding on endoscopy for now. Feeding therapy consult/eval (which we already have scheduled for 10 am tomorrow...and is the same therapists we saw a couple months ago with OT) because he already have some oral aversion. :( Swallow study with speech therapist to be scheduled. Can stop feeding every 2 hours (Praise Jesus!), and go to feeding every 3 hours during the day, 4 hours at night, faster flow bottle nipple to try and get more in him. Baby food two times a day. But FRIENDS...he miraculously gained weight, and didn't lose! I am certain this is a gift from above. Thank you Lord. We still need to watch for hydration, but need to also wait and see if these meds will help (after restarting on Tuesday). We are relieved we have a new plan to at least try. We still love our Beckett dearly, and are going to TRY and stress out less. We are still so thankful for medical professionals who will answer our long list of questions! ;) Actually, Ben and I are to the point where everything is funny we are so tired. :) thanks for praying! Pray for some amazing rest for all of us tonight!
No comments:
Post a Comment