Update on the Busy Day

Unfortunately, I really couldn't pay attention to the rest of the church service. Guess moms are really good at that, being distracted and all. When we got to the hospital (Thank you Anna and Jared for taking Ellie so both Ben and I could come), Beckett's nurse already said that his belly size had gone down with the help of the replogle tube, which is the tube similar in size to the OG tube, but has a suction attached to the end. She also said his color wasn't the greatest this morning either.:( She had him yesterday, and just knew that something wasn't right. So for two hours straight this morning, they were working with him. Between the blood cultures, urine culture, getting the IV started, stopping the Vapotherm, re-starting the CPAP, and not being able to get the second line in his foot for the blood transfusion in...

Not going to lie, I'm glad I wasn't here.

It was a lot to hear over the phone, I'm not sure how I would have handled it being here. Other days, maybe. Guess just not today. I already hate how distended his tummy looks, and the fact that it was even bigger! Makes me so sad for him.

He did have a few more issues that I didn't mention. While the nurse and RT were giving him a bath yesterday, they found four red spots on his face. The nurse called in the nurse practitioner to take a look at it. Then the spots burst before the practitioner could even make it to the room. They swabbed the fluid and sent it out for a culture. Not sure if it's staff infection or not, but the culture results are supposed to be back within 24 hours which is at 5 pm today.

He also had some nasty yellow residual, so motility is being affected by whatever is going on. 

He did get his first dose of antibiotics - gentimyicin and zosyn. He will continue those based on the results from the blood and urine cultures that will be back within 24 hours (tomorrow around 11 am probably). Because of his increase in Apneas and Bradycardias, the doctor gave the new adjusted dose of caffeine based on his weight, at 2 pm today (so 12 hours early, just to try and get that going too).

They weren't able to get a second IV inserted for his blood transfusion, so they are stopping his TPN (IV nutrition) and will deliver the blood through the line in his arm. Hopefully he will keep his blood sugars stable through this process. They will check it periodically through out the transfusion. He's getting 30 mls of blood. Again, thank you O negative blood donors. They told us too that most likely, it's the same donor. Oh, and we forgot to mention last time Beckett needed a blood transfusion that if you do give blood. Ben gave blood shortly after the last one, at Carter Blood Care, and they credited it to Beckett. So if you donate blood at Carter in North Texas, ask to credit it to Beckett Gramkow, and they actually won't charge for the blood that Beckett needed here in the hospital. I think that is so neat.

His CRP (measures inflammatory response) was elevated, his hematocrit was low at 26.9, and everything else was kind of borderline.

He's getting another Chest X Ray, along with a Kidney, Ureters and Bladder X Ray at 5 pm, and at 4 am as well. And remember tomorrow is another head ultrasound (ugh, tomorrow is going to be a busy day too, I'm guessing) Dr.Grubbs is back tomorrow, and wow, we will have lots to share with him!

Dr. Lynch just came in and is already encouraged by how different Beckett looks from this morning. His belly is softer so that is good. We had grilled the nurse practitioner when we first got here, so we didn't have many extra questions for the doctor. :)

So we again, will just continue to wait and see. Keep praying.