Better Day

Well, Miss Ellie is doing better and it's 3:15 p.m. Ellen (her nurse practitioner) came in and saw Ellie today and said she's doing great for her age...again for her age. She reminded me that this is how it's going to be and you'll have ups and downs...and that might be one of the hardest things we'll have to encounter...it'll be real slow...and hard...she told Ellie that she needed to be good today so Mom can stop tearing. Ellen moved her feedings up to 17 mLs every three hours. She's tolerated them so far and she said she wasn't concerned about the NG tube length because she's done so well with her feedings. They are also discontinuing her lipids today. They did take off the velcro cpap looking thing and went back to old fashioned taping the nasal cannula - but now it's real close to her eyes..her cheeks are all red, Ellen said it'll go away. I think that was the hardest thing for me - seeing her get the tape pulled off multiple times, and her cry is stronger. She's had more desats rather than bradies lately, and this is better than both - so at least her heartrate is keeping constant even when she's having breathing spells. She just made the sweetest baby noise and both mom and dad jumped to her side. She stretched and smiled...I think she wanted to see if we were still there. :) Continued prayers for mommy and daddy - we were planning on getting homework done, today started out rough, so we're trying to play catch up on both emotional and physical rest.